Friday, October 15, 2010

Horse Listeners Orchard

We recently went to the Horse Listeners Orchard in Ashford for the MOMS club fall party. We got to socialize and go on a tractor ride around the orchard. Jack had a great time! Here are some pictures of him near a row of huge pumpkins, which he loved!

Sunday, September 26, 2010

Affordable push-talk buttons??!?

I may have found an actually affordable speech button that records your speech and initiates it when the button is pushed!

Thanks to another mom on my Angelman Syndrome email list, I may not have to go about figuring out how to manufacture an affordable speech button myself! I was disgusted by the price tag of $100 or more for these speech devices since the recording device itself costs $9 and the rest is plastic. Companies like to charge more for things that their customer base needs for survival and can't find anywhere else. Thank goodness there is this company that seems to have some sort of moral compass! I'm going to try one to see if it is really easy for Jack to press, and if it is, we're going to get a bunch of them!

http://store.mayer-johnson.com/us/easy-push-talking-pocket.html

Jack and other people who may not be able to speak at any point in their lives, and who have trouble learning signs need augmentative communication devices like these buttons to be able to communicate with other people. It's not right to charge an arm and a leg for a product like this with parts made cheaply in China just because you can.

Saturday, May 22, 2010

Wish it were on Video

Last night, within the span of time between dinner and bed, Jack did two HUGE and miraculous things.

The first involved walking. Jack's been getting better and better recently at putting weight on his legs in standing and assisted walking, but this was totally new and different. I put Jack on his feet and put one of his favorite toys in my mouth so I could face him and hold his hands. Then, without even prompting or pulling him in any way, he took three or four REAL steps toward me to get the toy, with ALL of his weight on his legs! It was so different from the "walking" he has done lately. It was totally amazing! He got the toy and immediately started laughing, he was very proud of himself!

The other amazing thing he did was while his father started running his bath. He was in the living room, on the side with his toy bins, a wall that faces outside. When he heard his bath water being run, all the way across the living room and hallway and in the bathroom, he began scooting toward the sound of the water. Within a MINUTE he made it all the way to the bath tub! He's never done anything like that! He started scooting a couple months ago, but has never gone that far, never tried to go into another room like that!

We are very proud of him!!