School Starts!

Jack started school this week. He had a sick day yesterday but did well both Monday and today. The bus picks him up around 12:45 and drops him off around 4. He loves watching the other kids and his instructional assistant and teacher are adapting all of the activities for him, so he gets to participate in everything his classmates are doing. We're very happy with his school!

New and exciting things!

We got Jack's walker a couple weeks ago. It's a beautiful cherry red Rifton gait trainer that we get to keep! Since he's been practicing, he's taken a couple steps forward in it! It helps if we use plastic or chips bags as incentive. Here's a picture of Jack in it, after he took a few steps toward his prize.












We are saying goodbye to Jack's birth to three people this week. It's sad to say goodbye to the people he's spent so much time with and learned so much from. But I know he'll learn a lot when he starts preschool next Monday, on his birthday. It's scary but he'll be in good hands.

And, for the grand finale, Jack has been transitioning from lying to sitting this week! He did it once yesterday and THREE times today! I managed to catch it on video to share! This is a huge milestone he's been working on for months. GOOD JOB JACK!

Thank You Villari's Martial Arts

Thank you to everyone at Villari's Martial Arts, especially Ken, for organizing, planning, an executing the tournament fundraiser for Jack this past Saturday.

Villari's managed to raise over $2900 for Jack's CME therapy, enough to cover one whole trip to Toronto plus extra!


THANK YOU TO EVERYONE INVOLVED!!!!

Home again

We're finally home and Jack's doing much better. He still has the same lingering cold and I'm starting to get it now too, it's quite a doozy. He did well at the hospital off of oxygen for over 24 hours so hopefully the crisis is over!

Never a Dull Moment

Jack must have had some nostalgia over his first days of life this week because right now we're sitting in the ICU at CCMC. Jack's sedated and being given oxygen because he can't get enough oxygen when breathing on his own. Sound familiar?

After many tests the doctors are thinking he has a virus that has caused mucus to go down into his lungs and he has been unable to clear the congestion himself. He's being given antibiotics just for good measure and they're keeping him sedated so he won't pull the oxygen mask off his face, which he spent all day yesterday doing. They're going to try him on room air later and see if he's able to get enough oxygen that way. I guess it's up to him when he gets to go home!

Cute things we do when stuck inside

I found a video from a couple months ago of Jack exploring our bathroom with his walker. I'm not sure why, but he REALLY loves the bathroom. He gets excited whenever he's in it. The second video is from earlier tonight, and shows Jack doing his new squeaky voice that he's discovered.
Enjoy!

February Madness

Jack had his first seizure where we had to administer Diastat last week. Needless to say, it was a pretty awful experience and we'll be talking to his neurologist about adjusting his meds to try and prevent these breakthrough seizures.

Good news this month, our little friend Joshua from Belleville, Ontario was just diagnosed with Angelman Syndrome. We'd like to welcome Joshua and his family to the Angelman Syndrome community!