Home again

We're finally home and Jack's doing much better. He still has the same lingering cold and I'm starting to get it now too, it's quite a doozy. He did well at the hospital off of oxygen for over 24 hours so hopefully the crisis is over!

Never a Dull Moment

Jack must have had some nostalgia over his first days of life this week because right now we're sitting in the ICU at CCMC. Jack's sedated and being given oxygen because he can't get enough oxygen when breathing on his own. Sound familiar?

After many tests the doctors are thinking he has a virus that has caused mucus to go down into his lungs and he has been unable to clear the congestion himself. He's being given antibiotics just for good measure and they're keeping him sedated so he won't pull the oxygen mask off his face, which he spent all day yesterday doing. They're going to try him on room air later and see if he's able to get enough oxygen that way. I guess it's up to him when he gets to go home!

Cute things we do when stuck inside

I found a video from a couple months ago of Jack exploring our bathroom with his walker. I'm not sure why, but he REALLY loves the bathroom. He gets excited whenever he's in it. The second video is from earlier tonight, and shows Jack doing his new squeaky voice that he's discovered.
Enjoy!

February Madness

Jack had his first seizure where we had to administer Diastat last week. Needless to say, it was a pretty awful experience and we'll be talking to his neurologist about adjusting his meds to try and prevent these breakthrough seizures.

Good news this month, our little friend Joshua from Belleville, Ontario was just diagnosed with Angelman Syndrome. We'd like to welcome Joshua and his family to the Angelman Syndrome community!